Rittenhouse, D. R., &Shortell, S.M. (2016). Health-responsible communities: toolkit for data sharing. Sacramento, CA: California Health and Human Services Agency (CHHS). Excerpt from www.chhs.ca.gov/InnovationPlan/CHOIR_dec2016_revised.pdf All In: Data for Community Health – www.allindata.org William T. Grant Foundation, Research Practice Partnerships / Developing Data Sharing Agreements – rpp.wtgrantfoundation.org/developing-data-sharing-agreements Summary: “The city`s efforts to establish coordinated afterschool programming systems are an important strategy to improve the health, safety and academic availability of children and youth. Over the past decade, municipal executives, foundations, large not-for-profit intermediaries, and school and community providers have increasingly partnered to expand the number of quality programs available, increase youth participation, and improve outcomes for youth. However, even cities with strong leadership and effective coordination centres are often challenged by the lack of reliable information to answer fundamental questions about the scale and impact of after-school programmes in their communities. The decision to set up or improve a management information system (MIS) raises a number of difficult questions about what information to collect and how it will be used. how to negotiate data sharing agreements without violating data protection legislation; how to think about the difference between assessing youth outcomes and measuring program quality; and whether to build or purchase the technological backbone that supports the data requirements of policy makers, service providers, programme managers and researchers.
The National League of Cities (CLC) prepared this report through its Institute of Youth, Education and family to help guides, municipal officials and their local partners address these issues, while working to strengthen and coordinate services for youth and families, especially for cities building comprehensive after-school systems. “Networked information systems and access to integrated data from different sectors can improve the ability of communities to plan, monitor, innovate and respond to improved health. DASH strives to develop strong cooperation and connections between public health, health, human services, and other sectors that help build a culture of health that enables all Americans to live longer, healthier, and more productive lives. DASH will support cooperation to improve the health of their communities, promote equal health opportunities and contribute to a culture of health, by strengthening information exchange, integrating additional sectors and developing sustainable capacities. Dash aims to create knowledge and advance this emerging field by identifying and sharing opportunities, barriers, knowledge gained, promising practices and indicators of progress for the exchange of data and information on traditional health sectors. In the introduction: “This report identifies the experience of Cincinnati, East Baton Rouge, Miami-Dade County, and Seattle in interconnecting complex datasets generated independently of school-based health centers and schools. Communities are in different locations on a continuum of linkage between SBHC and education data. Their experience is recorded in the following case studies, organized to answer several questions. Why did they link their data or try to link it? What data has been linked? How do they relate this data? And how was the linked data used? The report also covers some of the challenges they have faced and the lessons learned. . . .